Broadening the Reach

Koman is the first to admit that not every CCFA test event has gone off with a smash, likening the experience to hurling a hundred sticky balls at the ceiling and seeing which ones stick.

“Historically, we’ve always gone back to the inner CCFA base, which basically is people who have the disease or families of those who have the disease,” says the Belgium-born Koman, whose 13-year-old daughter was diagnosed with Crohn’s more than six years ago. “With these events we’re bringing in a whole bunch of new people into our circle of friends, who are people that maybe didn’t hear about the disease but who love the concept of a particular event.”