Corner Office: Uprooting the Foundation

The steps a foundation takes to achieve its goals are likely to be as individualized as the diseases and disorders each confronts. Rare diseases and disorders, for example, are at a disadvantage when it comes to receiving high levels of federal funding or strong interest from the pharmaceutical industry. With a perception of less public demand, it is all too easy for research into rare diseases to become a low priority. A low priority to everyone, that is, except those who are affected.