Corner Office: Uprooting the Foundation

At Children's Tumor Foundation, we work to find cures for the approximately one in 3,000 people living with neurofibromatosis (NF), a title that encompasses three distinct genetic disorders (NF1, NF2 and schwannomatosis). NF can cause tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin. It can cause tumors to grow on or in the body, and it manifests itself differently in every single patient—from blindness in one, to deafness in another, to intense pain or even possibly cancer.